On 12 and 13 October 2021, the SensJus project convened a workshop on Health-Citizen Science Dilemmas under the EU General Data Protection Regulation 2016/679 (GDPR), at the Brocher Foundation, Geneva. Sandra de Vries from PULSAQUA joined as one of the participants to share our experiences.
The workshop explored the scarcely researched implications of the GDPR for the active sharing of environmental health data within the framework of Citizen Science projects. We discussed how data processing requirements under the GDPR may affect the advancement of Citizen Science for (environmental) health research, from a theoretical and empirical perspective.
The workshop was accompanied by two artists, one who captured the discussions and interactions among the physical and virtual audiences with a live drawing approach, the other who worked and is working on realizing visual consent forms for the SensJus project.
As a result of our collective brainstorming and note-taking, a booklet was realized, which can be freely downloaded here. The booklet received the support of the Brocher Foundation and of the SensJus project. In the below figures you can see some snapshots from the booklet, showing the input among others from Sandra de Vries, and the final take-aways from the workshop, one of them being a recommendation for better training on how to implement GDPR when applying citizen science. This is something PULSAQUA is working on.